http://www.bbc.co.uk/news/health-33560433#_=_
Friday 31 July 2015
Sunday 26 July 2015
Approaching the families of potential organ donors
http://www.odt.nhs.uk/pdf/family_approach_best_practice_guide.pdf
- research about whats the best approach
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- research about whats the best approach
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myths
http://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/organ-donation/art-20047529
Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.
Myth: Maybe I won't really be dead when they sign my death certificate.
Myth: Organ donation is against my religion
Fact: Organ donation is consistent with the beliefs of most major religions. This includes Roman Catholicism, Islam, most branches of Judaism and most Protestant faiths. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy.
Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.
Myth: Maybe I won't really be dead when they sign my death certificate.
Myth: Organ donation is against my religion
Fact: Organ donation is consistent with the beliefs of most major religions. This includes Roman Catholicism, Islam, most branches of Judaism and most Protestant faiths. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy.
Myth: I'm under age 18. I'm too young to make this decision.
Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.
Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.
Myth: I'm too old to donate. Nobody would want my organs
Myth: I'm not in the best of health. Nobody would want my organs or tissues.
Myth: Rich and famous people go to the top of the list when they need a donor organ.
Myth: My family will be charged if I donate my organs.
Neil Healy, a specialist nurse who deals with organ donation said: “The main myth is people thinking they are not suitable to be an organ donor. You are never too old to join the NHS Organ Donor Register and you can still join if you have a medical condition.
Neil Healy, a specialist nurse who deals with organ donation said: “The main myth is people thinking they are not suitable to be an organ donor. You are never too old to join the NHS Organ Donor Register and you can still join if you have a medical condition.
“The other myth is people believing that if they are on the Register and fall ill, doctors won’t treat them as well or not try as hard to save their life. This is not the case. An entirely different team of donation and transplant specialists are called in if you die and you have agreed to be an organ donor.”
Organ donors 'should be offered funeral expenses'
Patients who donate their organs should have their funeral expenses paid for by the NHS, according to a leading ethics body.
The Nuffield Council of Bioethics report said the move could lead to more people donating their organs.
Keith Rigg, a transplant surgeon from Nottingham University Hospitals NHS Trust and one of the report's authors, said: "There is a well-known shortage of organs."
One recommendation to boost the number of donors was to pay the funeral costs of people who join the Organ Donor Register and whose organs are transplanted.
preotenial areas of focus - Babies who need donation.
Dr Richard Kirk, a consultant paediatric cardiologist in Newcastle, is caring for three tiny children in urgent need of a transplant.
He told the BBC: "They would be transplanted and home if the UK system was the same as in other countries around the world.
"There is a crazy double standard operating - it's forbidden to declare a baby 'brain stem dead' in the UK and yet no-one minds us flying to Europe, where the doctors are allowed to diagnose brain stem death, and bringing the donated organs back to the UK to use.
"Where is the sense or ethics in that?"
'No chance'
Sarah Cox, was initially a healthy baby. But she contracted viral meningitis, which damaged her heart, making her seriously ill.
When she was three weeks old, her family were told there was no chance she was going to survive.
At the moment Sarah's life was hanging in the balance, an organ became available in Europe.
Viral meningitis weakened Sarah Cox's heart leaving her in need of a transplant when she was just days old.
Her mum Jennie told the BBC: "It wouldn't have happened if we were only reliant on UK donors.
"Sarah was very fortunate to be in a position where there was no-one else in Europe that needed a heart at that time or suitable and she was able to have that.
"If the roles had been reversed and there was a child in Europe who was suitable, neither of them would have survived because we wouldn't have been able to agree to donate our child's organs and that seems an inconsistency, which is difficult to accept."
Around 10 babies every year in the UK need a transplant from a donor under two months old.
He told the BBC: "They would be transplanted and home if the UK system was the same as in other countries around the world.
"There is a crazy double standard operating - it's forbidden to declare a baby 'brain stem dead' in the UK and yet no-one minds us flying to Europe, where the doctors are allowed to diagnose brain stem death, and bringing the donated organs back to the UK to use.
"Where is the sense or ethics in that?"
'No chance'
Sarah Cox, was initially a healthy baby. But she contracted viral meningitis, which damaged her heart, making her seriously ill.
When she was three weeks old, her family were told there was no chance she was going to survive.
At the moment Sarah's life was hanging in the balance, an organ became available in Europe.
Viral meningitis weakened Sarah Cox's heart leaving her in need of a transplant when she was just days old.
Her mum Jennie told the BBC: "It wouldn't have happened if we were only reliant on UK donors.
"Sarah was very fortunate to be in a position where there was no-one else in Europe that needed a heart at that time or suitable and she was able to have that.
"If the roles had been reversed and there was a child in Europe who was suitable, neither of them would have survived because we wouldn't have been able to agree to donate our child's organs and that seems an inconsistency, which is difficult to accept."
Around 10 babies every year in the UK need a transplant from a donor under two months old.
"In the UK, the original guidelines were written long before organ donation was a possibility for children and their families and they were really just cautious and rather conservative.
Friday 24 July 2015
great ormonds street children transplant
http://www.bbc.co.uk/iplayer/episode/b063hpbj/great-ormond-street-series-3-2-fight-to-breathe
great ormond street
great ormond street
-fight to breath
lungs are considered the most complex organ to transplant
failure rates remain high
25% of patients die on the waiting lis before they get new lungs.
young females will deteriorate more rapidly than others on the waiting list -e.g jess
dr helen spencer
dr paul Arora
transplanted lungs won’t last forever - they are not a cure
for some people a lung translate can last 5-7 years
maybe even 10
‘you have to be honest with children, you have to do it in a way that you dont frighten them with the answers’ - dr helen spencer
parents have to agree for their child to have a transplant.
———————————————
in the process of a lung translate
operated on by mr victor tisane
(very difficult to breath) lung infection, puss inside the airways -humbling to see this sort of thing when we take it for granted, we take a breath without even thinking about it but patients with cystic fibrosis they have had to make such a conscious effort to breath.’
the next 4 hours after chloe transplant in crucial to tell weather the lungs are starting to function.
24.00
chloe post transplant
obsessive monitoring
proportion of transplants won’t go well and perhaps won’t get through first year
new lungs leaking worrying amounts of fluid
the longer someone is on intensive care the more the problems tend to appear and stack up. kidneys, gut
doctors much decide if there is anything else they can do to save her.
doctors preform another operation, to help new lungs attach to her body and stop the leakage of fluid inserting medical talcompowdered onto the surface of the lungs via holes in her chest.
the hope that after the recover can finally begin
‘parents dont come to us of sympathy- open and honest advice about the right thing to do’
3 month after transplant - chloe is going home
chloe is back at school and doing well
———
charlie
just 10 days of joining donor list
‘its gonna open up a new door and its gonna change the rest of my life and ill be able to live a normal life and ill be aable to play and not get out of breath.’
mt nagarajan muthianlu - lung transplant surgeon
one of the most experienced in the world of children lung transplants.
ones the new lungs and remove from the donor surgeons have only 6 hours to connect them to charlies blood supply or they will seized to be viable.
taking out lungs from a patient with cystic fibrosis their lungs are very scared and very stuck done and trying to take them out the explantation can be very difficult - helen
with in minuets charlie lungs are removed
after 6 and a half hours in surgery charlie is breathing with new lungs
will be another 2 hours till charlie parents can see him
‘i want to everything i can possibly do’
helen- ‘ for me thats the joy of this journey, seeing them for that first time being able to enjoy a normal quality go live do what all of their friends are doing keep up when there playing food ball or swimming and thats the extraordinary thing about transplant’
charlie is now swimming, playing football, cricket at tennis.
——————
'i wanted to make the decision myself incase something went wrong i didn’t want the to blame themselves’ (parents)
jess - 2 more months have gone by without new lungs
'i just said no, this isn’t real, its a dream.
i felt really numb, i just kept looking here (patted her chest) going oh, there gonna open me and i was just so worried but deep down i new if i didnt have it i would die anyways so i may swell have it but when they told me it wasn’t right for me and the lungs weren’t a match i new that i wanted it because when they took it away from me i wanted it more. thats how i knew i was sure.
when they took it away from me i really just felt like, oh, but I’m also scared to get another call just inane that happen again.’
4 months received match
making a rapid recovery
‘somebody has been selfless enough to give me their organ so
the least i could to do is push it and work at it because they are still living in my so i could still help them live n ill be able to actually go to school and put in the effort to get good GCSEs i wanna be the first person in y family to go to university’
‘all i can think about is my little sister summer because she deservers to have a older sister thats well, i just wanna prove that it doesn’t matter whats happened in the pat you can change it like 2 weeks ago i was on a incubator, now look at me , look at how much I’ve changed.
jess has recently completed a 10km walk for charity.
———
louis
only ope may be a trcioscmony to help him breath- but this may rule out a possible transplant
if he does have a traciosomy may keep him a live for weeks/months
we won’t offer transplants to people who are on intensive care unit on ventilation as it is well recognise that if you transplant people in this situation
the outcome is way worse then if they are able to breath on their own. - dr arora
if louis is accepted on the transplant list - youngest patient
'you get to know the child very well and the patients very well. obviously all the doctors and nurses are all human you end up with an emotional attachment, but its crucial we dont let our emotions impact upon the advice with give to parents we have to be dispassionate and objective as possible.’ dr arora
died morning after deciding to go on the waiting list.
spent half he’s life in hospital
many children pass through this hospital
and louis was one we got to know very well
hard we were unable to do anything for him, hard that we had some ideas, harder still that we never got the chance to put them all into place.
Monday 20 July 2015
areas of potential focus - how religion may be stopping people from signing up.
saddia karim - kidney dialysis patient -essex
'you dont have a normal life’
many muslims worry about donating organs fearing that their religion forbids it.
now though, some imams have started to make clear in their sermans
‘it will make a massive difference because they will be able to say, yes you can, you know, its not wrong, you;re not gonna be doing anything wrong or your not going to be punished or whatever people belive.
I’m really really pleased that this is happening it will make a massive difference in the muslim community.'
nearly a 3rd of the waiting list is made up of people for the black and asian minority community
only 5% of deceast donors come from that community
dr yassa mustafa - kidney research peer educator
visits mosques to talk to worshipers and imams about organ donations
Friday 17 July 2015
Sunday 12 July 2015
though charity ads are allowed more leeway with distressing visuals - is this even the most effective approach?
advertising standards authority
although allowing more leeway is justified, alot of advertising strategies tend to now use shock-tactics to gain attention - but is it the right sort of attention?
using hard-hitting ads, though memorable may be for the wrong reasons - it has to be obvious what the ad is trying to bring awareness to and should enforce a reaction. - some might just make people more avoidant due to the distress the ad may bring.
Charitable causes and public service ads often highlight sensitive and sometimes upsetting subject matter. Traditionally, we’ve granted more leeway to these types of ad because of the importance of the issues they are raising awareness about. But our research has prompted us to question whether we’re getting things right.
although allowing more leeway is justified, alot of advertising strategies tend to now use shock-tactics to gain attention - but is it the right sort of attention?
using hard-hitting ads, though memorable may be for the wrong reasons - it has to be obvious what the ad is trying to bring awareness to and should enforce a reaction. - some might just make people more avoidant due to the distress the ad may bring.
'There is no doubt that hard hitting campaigns cut through the noise. We are bombarded with messages every day so campaigns that stand out and catch our attention are often necessary. But they must always have a behavior change message in mind...Simply stating a problem without a solution or way forward will just not work. Campaigns might start with a hard hitting ad, but it must not end with one.'
http://www.social-change.co.uk/news/post.php?s=2012-02-14-do-hard-hitting-adverts-work
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